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 Post subject: Re: Eczema
PostPosted: Tue Apr 09, 2019 12:12 am 
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Joined: Sat Mar 06, 2010 11:39 pm
Posts: 2345
Heartmum, I hope you’ve found a treatment that works for you for many years to come x


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 Post subject: Re: Eczema
PostPosted: Tue Apr 09, 2019 4:36 pm 
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Joined: Fri Oct 02, 2009 12:35 pm
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Location: Buckinghamshire
KS10 wrote:
Heartmum, I hope you’ve found a treatment that works for you for many years to come x


Thank you KS10 fingers crossed X x x

_________________
Heartmum x x x


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 Post subject: Re: Eczema
PostPosted: Sun Apr 14, 2019 6:59 pm 
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Posts: 710
KS10 There is a newish treatment for Eczema called Protopic it is a topical Immunosuppressant and works wonders.

My daughter had eczema all her life on and off. It got particularly bad when she was 11 she had weeping sores on many parts of her body including on her face. I had always gone the natural route until it became so bad and had gone on like that for a couple of years that we really had to do something serious. She tried Hydrocortisone creams and they would improve things whilst she used them and then the eczema would return as soon as she stopped.

Finally a dermatologist gave her a prescription for Protopic. within about 2 weeks of using it her eczema had gone completely. It has not come back except very occasionally (as in twice in 3 years) when she has got very stressed. Both times she had small very insignificant outbreaks. She immediately used the Protopic and only for 2 or 3 days and the eczema went straight away and stayed away.

It has been a game changer for my daughter and I would highly recommend it. I was very fearful of using it initially because of the side effects written in the contraindications section which are a bit scary to say the least but it has now been well tested for over 10 years and there are no noted long term effects in humans. Until a couple of years ago it was only available from a dermatologist but I gather that GPs can now prescribe it. It works!


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 Post subject: Re: Eczema
PostPosted: Sun Apr 14, 2019 7:21 pm 
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Glad to hear the protopic worked for your DD's eczema.

In many areas it is listed as an Amber drug, has to be started and initially monitored by the dermatologist but then can be continued by the GP practice if there are no problems

http://www.dorsetccg.nhs.uk/Downloads/a ... 202013.pdf


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 Post subject: Re: Eczema
PostPosted: Mon Apr 15, 2019 7:54 am 
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Thanks, Eccentric. Protopic rings a bell too. I think DS was prescribed it just once, but I could be wrong. He has an appointment in August and I will ask him to mention it then.


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 Post subject: Re: Eczema
PostPosted: Mon Apr 15, 2019 1:55 pm 
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hermanmunster wrote:
Glad to hear the protopic worked for your DD's eczema.

In many areas it is listed as an Amber drug, has to be started and initially monitored by the dermatologist but then can be continued by the GP practice if there are no problems

http://www.dorsetccg.nhs.uk/Downloads/a ... 202013.pdf

My understanding is that It was an Amber drug but has been downgraded because there is absolutely no evidence that it causes problems topically in humans. My understanding is that the experiments that were initially conducted on mice were with intravenous doses that were many hundreds of time greater than the topical dose. I refused to use it on my daughter for a few years because of the contraindications but as time has passed my understanding is that those have been disproved. I researched it very carefully indeed before I allowed it to be used on my daughter. I don't have the papers that I read anymore and don't have time to look them up otherwise I would post them.

However I am always open to this being disproved and would look at new evidence with interest and care so if you have recent evidence that it is harmful in contradiction to the above then I would be very grateful of the information.


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 Post subject: Re: Eczema
PostPosted: Mon Apr 15, 2019 2:02 pm 
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Eccentric wrote:
hermanmunster wrote:
Glad to hear the protopic worked for your DD's eczema.

In many areas it is listed as an Amber drug, has to be started and initially monitored by the dermatologist but then can be continued by the GP practice if there are no problems

http://www.dorsetccg.nhs.uk/Downloads/a ... 202013.pdf

My understanding is that It was an Amber drug but has been downgraded because there is absolutely no evidence that it causes problems topically in humans. My understanding is that the experiments that were initially conducted on mice were with intravenous doses that were many hundreds of time greater than the topical dose. I refused to use it on my daughter for a few years because of the contraindications but as time has passed my understanding is that those have been disproved. I researched it very carefully indeed before I allowed it to be used on my daughter. I don't have the papers that I read anymore and don't have time to look them up otherwise I would post them.

However I am always open to this being disproved and would look at new evidence with interest and care so if you have recent evidence that it is harmful in contradiction to the above then I would be very grateful of the information.


I don't know, I don't have the info - would ask prescribing advisors / drug info services for it.

I made the comment as it happens to be amber still in the area I work in and it appears several others and that can limit how it is prescribed, I didn't want people going to their GP expecting to be able to get it and being disappointed. .


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 Post subject: Re: Eczema
PostPosted: Tue Apr 16, 2019 6:09 am 
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Joined: Tue Mar 04, 2008 2:28 pm
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From experience of a similar situation in a different specialism, if there is a long waiting list for the specialist clinic there may be the option of paying for a private consultation ( usually costs £100-£150) to get the initial medication and then your GP can take over.
It may not 'work' for this medication and
I'm speaking from experience as a patient and not with any medical expertise.


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 Post subject: Re: Eczema
PostPosted: Tue Apr 16, 2019 7:56 am 
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DS has an appointment every year in August at a London hospital because of his nut allergy and eczema. He’s been going for years. I’m pretty sure that he was offered Protopic by them a few years ago. It was definitely something they were trialling and the name sounds so familiar. I think at the time DS was using the Chinese medicine so he didn’t use it immediately.


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 Post subject: Re: Eczema
PostPosted: Tue Apr 16, 2019 2:11 pm 
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Joined: Fri Dec 19, 2014 7:58 pm
Posts: 710
KS10 wrote:
DS has an appointment every year in August at a London hospital because of his nut allergy and eczema. He’s been going for years. I’m pretty sure that he was offered Protopic by them a few years ago. It was definitely something they were trialling and the name sounds so familiar. I think at the time DS was using the Chinese medicine so he didn’t use it immediately.

My daughter was told to use it twice a day initially and then to just every now and again as a maintenance dose. However we found that her eczema cleared really quickly after just a few days of use. We decided to keep applying it for 2 weeks just to make sure. She doesn't seem to need maintenance dose. It seems to have just stopped her eczema in its tracks she couldn't be more pleased. She had discoid eczema on her face and body. People thought it was ring worm so she got teased and avoided at school. Obviously there is no guarantee that it would work for your son as well as it has worked for my daughter but I sincerely hope that it does.


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